The mp Modem, supported by the secretary of State Olivia Gregory, has filed two amendments to a lifting of the ban of genetic tests in France. The issue is debated this Thursday at the Meeting.
The issue of genetic testing and genealogical must be addressed this Thursday in the chamber in the context of the result of the examination of the draft law on bioethics. Currently banned for sale in the open access consumers in France, several members propose to go back on this decision in order to allow these tests issuing of indications of geographical origins and calculations of genetic distance between individuals.
the image of the mp Modem in Haut-Rhin, Bruno Fuchs, who has filed two amendments to an immediate lifting of the ban on DNA testing. Amendments signed by eleven members, including the rapporteurs of the project of law Coralie Dubost and Jean-Louis Touraine, as well as the mp, now Secretary of State for the social and solidarity economy, Olivia Gregory. Maintenance.
The Express. Why this ban on the purchase of tests pedigree has no meaning according to you ?
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Bruno Fuchs. This prohibition is unnecessary, since all the French who wish to know their genetic origins, geographic or discover a kinship can do so in just a few clicks on the internet. They are more numerous – 100 000 each year to purchase these tests through foreign companies. And there is a form of hypocrisy in France. It is said that these tests are banned, but nobody has ever been convicted.
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The State does not want to enforce the law and has not yet wanted to take on the subject. The executive and camped on its positions, in prohibiting this practice, but it is the only european country with Poland to do so. Only, this field is heavily occupied by the citizens now, and the legislature should invest it. Because there are two problems today, first the question of the security of the French who are turning to foreign companies, and then the question of the sovereignty of the country. So far, no one has really thought about the consequences of a ban. While the entire law, bioethics is going in the direction of this opening, and that there is no convincing argument to not legalize this practice.
what it does problem to spend by foreign companies?
The French are more likely to purchase these tests through foreign companies. American companies such as Myheritage.com, 23andMe, and many others, make the trade of genetic data of the French users without any control. It is necessary to put an end to this lack of regulation by placing the data of the users under the protection of the european regulation RGPD. The companies who market them would be held to rules that are more stringent than those that apply today : requirement of express consent of the user, requirement of communication in the French language, information obligation to be loyal to the consumer, plan RGPD for data mining…
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At the present time, the French are in danger because they let their data to companies who will exploit them, while in our country, there has many advantages, such as the ability to request their deletion, for example. In addition to that, the tests, for many, are not reliable or accurate. You can see this clearly when we send the same sample to two different companies : the results are not the same. And it also opens the discussion on the quality of the information that one decides to give to the French.
You can also see an economic issue for France…
Exactly ! At the time, when he speaks of the relocation of the production in France after the setbacks of the Covid-19, it is giving all our data to foreign companies. It is a business that is going to be major, and which continues to develop then we need to take it.
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In terms of economic opportunities, legalize the genetic testing will lead to the emergence of a French sector, to create jobs in a growing market with a global sales estimated overall at € 2.8 billion.
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bioethics
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beyond the legal aspect, one can also see in these tests a perfect tool of recovery that will allow French players to benefit from the income derived from the economic value and scientific data.
